Self care becoming an achievable goal

Since I transferred my dialysis care from the Midlands Regional Hospital in Tullamore to the B Braun Wellstone Midlands Renal Care Centre in Port Laoise, we have been working towards the goal of self care. This will be where I will take responsibility for my own care and my own dialysis in conjunction with the unit staff. I am already back to cannulating my own fistula, and preparing the trolley in advance of this. Soon, I hope that the unit staff will start to teach me to prepare the dialysis machine in advance of the treatment. In the last week, … Continue reading Self care becoming an achievable goal

Extra time on dialysis should bring improved results

Following the monthly review by my consultant, it has been decided to increase my time on dialysis to 4 hours per session from the 3.5 hours that has been the normal since I started. The reason for this is that it should help to get me higher clearance which is better than not. So from Wednesday, I will have even longer to find things to do, listen to Audible or music. I also hope that it might stop there being so many sharp decreases in blood pressure. Continue reading Extra time on dialysis should bring improved results

UK Aids memorials to be linked by national memorial website. London memorial due to be in Tottenham Court Road.

News reached us this week that the #AIDSMemoryUK campaign founded by Ash Kotak, a long-term survivor of HIV, has announced that the London AIDS Memorial will be centrally located on Tottenham Court Road, close to the locations of: the first … Continue reading UK Aids memorials to be linked by national memorial website. London memorial due to be in Tottenham Court Road.

Mistake of British Prime Minister over HIV and AIDS illustrates why reporting guidelines are so important

During yesterday’s Downing Street Briefing, the British Prime Minster, the Rt Hon Boris Johnson MP, said that We haven’t got vaccines against SARS, AIDS or whatever. The Rt Hon Boris Johnson MP, Downing Street Briefing This is really not on. … Continue reading Mistake of British Prime Minister over HIV and AIDS illustrates why reporting guidelines are so important

End of an era… new chapter begins tomorrow

It doesn’t seem that long since I “graduated” from dialysis in Tallaght University Hospital to dialysis in the Midlands Regional Hospital in Tullamore. That event happened in June 2019. Since then, of course, we have had the year of Coronavirus which has skewed how time feels to have passed. There have been highs and lows whilst receiving care in Tullamore. I’ve had to fight HIV stigma (see this post). Some of that is still ongoing, some of the problems have been resolved. There’s still no social worker for the hospital in Tullamore (see what I did on that issue). That … Continue reading End of an era… new chapter begins tomorrow