Today brought one of those quiet but important conversations—the kind that happens in the hum of the dialysis unit, between the beeping machines and the steady presence of care. My clinical nurse manager and I reviewed my recent haemoglobin (Hb) levels, which have been climbing steadily over the past few weeks. On paper, that might sound like progress. But in practice, it’s meant my blood has become a little too “sticky”—a poetic way of saying it’s harder to filter, and dialysis becomes more complicated.

For the past two months, I’ve been receiving weekly Aranesp injections to support red blood cell production. It’s a common part of managing anaemia in dialysis patients, and it’s usually helpful. But sometimes, even helpful things need a pause. Today, we decided to hold off on the injection and review. The plan is to possibly shift to an every-other-week schedule, giving my body a chance to settle and respond more gently.

It’s a reminder that treatment isn’t just about numbers—it’s about nuance. About listening to the body, the blood, and the quiet signals that say, “Let’s adjust.” I’m grateful for a team that hears those signals with me.

For anyone navigating dialysis, HIV, or any long-term treatment: your voice matters in these decisions. So does your comfort. Don’t be afraid to ask questions, suggest pauses, or share what you’re noticing. Medicine is a partnership, and today felt like a good example of that.