Revised format for recording dialysis and HIV medications and stats

So, on Friday, I had created a table for recording particular stats whilst on dialysis. Then a friend suggested that I use a bullet journal to make things easier, so I have done that. I then realised that I had a blank page to the left of my table, and so have used that to create checklist to keep track of my medications. So, let’s see how this goes for the next few days and then I will decide whether to continue or not. Continue reading Revised format for recording dialysis and HIV medications and stats

HSE computer hack has helped mental health for me as a dialysis patient

Dialysis, like much of healthcare, is all about numbers. The numbers may be examined on a yearly, quarterly, monthly, or weekly basis. Some are checked hourly during each dialysis session. Usually, these hourly numbers are registered and checked by the … Continue reading HSE computer hack has helped mental health for me as a dialysis patient

Self care becoming an achievable goal

Since I transferred my dialysis care from the Midlands Regional Hospital in Tullamore to the B Braun Wellstone Midlands Renal Care Centre in Port Laoise, we have been working towards the goal of self care. This will be where I will take responsibility for my own care and my own dialysis in conjunction with the unit staff. I am already back to cannulating my own fistula, and preparing the trolley in advance of this. Soon, I hope that the unit staff will start to teach me to prepare the dialysis machine in advance of the treatment. In the last week, … Continue reading Self care becoming an achievable goal

Extra time on dialysis should bring improved results

Following the monthly review by my consultant, it has been decided to increase my time on dialysis to 4 hours per session from the 3.5 hours that has been the normal since I started. The reason for this is that it should help to get me higher clearance which is better than not. So from Wednesday, I will have even longer to find things to do, listen to Audible or music. I also hope that it might stop there being so many sharp decreases in blood pressure. Continue reading Extra time on dialysis should bring improved results

UK Aids memorials to be linked by national memorial website. London memorial due to be in Tottenham Court Road.

News reached us this week that the #AIDSMemoryUK campaign founded by Ash Kotak, a long-term survivor of HIV, has announced that the London AIDS Memorial will be centrally located on Tottenham Court Road, close to the locations of: the first … Continue reading UK Aids memorials to be linked by national memorial website. London memorial due to be in Tottenham Court Road.

Mistake of British Prime Minister over HIV and AIDS illustrates why reporting guidelines are so important

During yesterday’s Downing Street Briefing, the British Prime Minster, the Rt Hon Boris Johnson MP, said that We haven’t got vaccines against SARS, AIDS or whatever. The Rt Hon Boris Johnson MP, Downing Street Briefing This is really not on. … Continue reading Mistake of British Prime Minister over HIV and AIDS illustrates why reporting guidelines are so important