During yesterday’s Downing Street Briefing, the British Prime Minster, the Rt Hon Boris Johnson MP, said that We haven’t got vaccines against SARS, AIDS or whatever. The Rt Hon Boris Johnson MP, Downing Street Briefing This is really not on. … Continue reading Mistake of British Prime Minister over HIV and AIDS illustrates why reporting guidelines are so important
It would have to happen on the day that Europe went into daylight-saving time, so now that we’re on Irish Standard Time, I was awake at 06:00 to ensure that I would be on the 08:41 train from Portarlington to … Continue reading AstraZeneca jab 1 received this morning
I earned my “degree” in Epilepsy Awareness in advance of #PurpleDay. Why not get yours by clicking the link below? https://bit.ly/2BkBAOu Epilepsy Ireland is the only organisation in the country that supports the needs of the 40,000 people who are living with the condition … Continue reading Epilepsy Awareness “degree” awarded
Yesterday, I recognised the gear change that has happened in my care for living with chronic kidney failure. Since December 2018, when my kidneys failed due to Goodpasture Syndrome, I have received my dialysis treatment in a hospital setting. At … Continue reading Dialysis gear change
The afternoon started with the taxi arriving at home at 13:30., the journey to Port Laoise was over almost as soon as it had begun. I was there for 13:45. Fifteen minutes? That was even shorter than the twenty minutes … Continue reading Coming home positive from dialysis session: first time in B Braun in Port Laoise
It doesn’t seem that long since I “graduated” from dialysis in Tallaght University Hospital to dialysis in the Midlands Regional Hospital in Tullamore. That event happened in June 2019. Since then, of course, we have had the year of Coronavirus which has skewed how time feels to have passed. There have been highs and lows whilst receiving care in Tullamore. I’ve had to fight HIV stigma (see this post). Some of that is still ongoing, some of the problems have been resolved. There’s still no social worker for the hospital in Tullamore (see what I did on that issue). That … Continue reading End of an era… new chapter begins tomorrow
The World Kidney Day 2021 position paper – Towards Patient-centered care for people living with kidney disease presents top line evidence, context and call to actions for anyone who wants to advocate for patient centered kidney care vis-à-vis decision-makers. Central … Continue reading Living well with kidney disease: towards patient-centred care
Yesterday, on 1st March 2021, HIV Ireland hosted a webinar to launch their new Media Reporting Guidelines, to help journalists and editors in how to talk about HIV and AIDS. I was fortunate to be asked to take part as … Continue reading Zero Discrimination Day 2021 marked by launch of Media Reporting Guidelines
Since the Covid-19 pandemic started last year, we have been restricting our movements in general in line with the guidance from the Government of Ireland. This morning, we have had to go one stage further. Andrew has not been feeling … Continue reading New challenge: restricted movements while husband self-isolates
