Revised format for recording dialysis and HIV medications and stats

So, on Friday, I had created a table for recording particular stats whilst on dialysis. Then a friend suggested that I use a bullet journal to make things easier, so I have done that. I then realised that I had a blank page to the left of my table, and so have used that to create checklist to keep track of my medications. So, let’s see how this goes for the next few days and then I will decide whether to continue or not. Continue reading Revised format for recording dialysis and HIV medications and stats

HSE computer hack has helped mental health for me as a dialysis patient

Dialysis, like much of healthcare, is all about numbers. The numbers may be examined on a yearly, quarterly, monthly, or weekly basis. Some are checked hourly during each dialysis session. Usually, these hourly numbers are registered and checked by the … Continue reading HSE computer hack has helped mental health for me as a dialysis patient

Meds: a matter of obedience — thanks St Benedict

The third step of humility is that for the love of God one should be obedient to a superior in all things imitating the Lord of whom the Apostles says, ‘He was made obedient even unto death.’ The Rule of Saint Benedict, Chapter 7: Humility, translated by Abbot Parry OSB, Gracewing, 1990. In recent weeks and months, I have been re-reading The Rule of Saint Benedict, with a view to putting the principles of his rule into practice in my own life. A couple of Sundays ago I was on a Zoom call with the House of Initia Nova Benedictines … Continue reading Meds: a matter of obedience — thanks St Benedict

Bit of a mix-up: but it’s all sorted now!

As we know, actions have consequences. The issues that I had on Thursday that prompted my trip to the North (briefly) and the telephone call to the dialysis unit, had a knock-on effect on my care for today. Always think through what will happen. And then think it through again. Double check what you think is to happen. Continue reading Bit of a mix-up: but it’s all sorted now!

End of the line…

Back in December 2018, I gained a medical device in my chest called a permacath that allowed for haemodialysis. Since the autumn of 2019, this has now been carried out via the arteriovenus fistula in my upper left arm rendering the permacath redundant. Therefore, I am pleased to report that it is the end of the line for the permacath. Last week I was told that it would be taken out on Friday 28th February, but yesterday I received a telephone call from the dialysis unit informing me that there was a slot available this Friday, did I want it? … Continue reading End of the line…