Maybe less than a week to go on Eviplera

It is hard to believe that it is about three-and-a-half years since I started taking Eviplera. Looking back it is clear that at the beginning I did know that it was meant to be taken with a meal, but somehow along the way I had forgotten. I had reverted to type and took it last thing at night before heading to bed. This means that it is not working as well as it should be, so the last time I was at my HIV clinic in Dublin, there is talk of me changing to a drug that does not need to … Continue reading Maybe less than a week to go on Eviplera

Over thirty years of experience and it’s a schoolboy error that delays my day!

With a hospital appointment clashing with the funeral of a friend, today was not the day for further delays to happen during a routine appointment at the Royal Victoria Hospital. Sadly, a simple schoolboy error ended up winding me up. At least I don’t have to return for six months… Continue reading Over thirty years of experience and it’s a schoolboy error that delays my day!

How involved are you in your HIV care? (via Baseline magazine)

How involved are you in your HIV care? What is the impact of treatment on your day-to-day life? BASELINE have an online survey, please complete it here. http://baseline-hivcare.kantarhealth.com/wix1/p1572343412.aspx Continue reading How involved are you in your HIV care? (via Baseline magazine)

Do we get to get your autograph now…?

It has been a goal for many months, indeed it has been a goal since I was diagnosed back in March 2009. Suffice to say the goal posts have moved now… but what happened in the Royal yesterday? Up at the HIV Clinic in the Royal Victoria Hospital, Belfast it was great to see new faces,  a few old ones and ones that have been there most days that I have been up. New social worker With Corinne having retired in June, there was a new social worker who has been in post for some months, he was very pleased … Continue reading Do we get to get your autograph now…?

And I nearly forgot my meds…

Having said on UTV last week about how good I have been about taking my meds, it was rather unfortunate that today I nearly forgot about them. Fortunately, of course, I had my rather wonderful husband Andrew on hand to ensure that I didn’t forget. He’s so good that my consultant at the Royal Victoria Hospital has commented in the past that she would like to prescribe an Andrew for all her patients. Well a big thank you to him and next week I should be able to report to my consultant that I’ve only missed one dose in months… … Continue reading And I nearly forgot my meds…

Two busy days

Yesterday and today have been two very busy days. I’m staying with a friend over in Bedford for a little holiday. It’s respite for Andrew and me both. Yesterday, being Remembrance I was out on parade with Bedford District Scouts, and today I was with their Deputy District Commissioner at the funeral of one of the County’s Vice Presidents. Respite is always important. Those who look after others need time to recover themselves. A break from the constant care and support that is given. One difficulty for me is remembering to take my meds. I haven’t missed yet – but … Continue reading Two busy days

More results: more good news

The school children who sat public exams back in May and June only had to wait until August to get their results. Me? I had to wait a little longer for the results from my blood tests at the Royal Victoria Hospital. So how did I do? Well I am pleased to say that the results are good. CD4 = 180 (12%) Viral Load = undetectable The Eviplera seems to be working well so we’re always hopeful that my CD4 count will go above 200 at some stage. It’s never been there yet since diagnosis and I think the lowest … Continue reading More results: more good news