Yesterday, as it was Monday, I expected there to be some difficulty in cannulating myself for my dialysis session. What I did not expect was that it would take my named nurse and I several attempts and then think that … Continue reading Right amount of fluid taken off, but still ½ a kilo over my dry weight?
At the beginning of May, my dialysis unit (the B Braun Wellstone Midlands Renal Care Centre in Port Laoise) made a suggestion of trying to see how many steps we could take each day to improve our mental health. The … Continue reading Walking challenge helped mental health: near 110,000 steps in last week!
Dialysis, like much of healthcare, is all about numbers. The numbers may be examined on a yearly, quarterly, monthly, or weekly basis. Some are checked hourly during each dialysis session. Usually, these hourly numbers are registered and checked by the … Continue reading HSE computer hack has helped mental health for me as a dialysis patient
Yesterday, I recognised the gear change that has happened in my care for living with chronic kidney failure. Since December 2018, when my kidneys failed due to Goodpasture Syndrome, I have received my dialysis treatment in a hospital setting. At … Continue reading Dialysis gear change
The afternoon started with the taxi arriving at home at 13:30., the journey to Port Laoise was over almost as soon as it had begun. I was there for 13:45. Fifteen minutes? That was even shorter than the twenty minutes … Continue reading Coming home positive from dialysis session: first time in B Braun in Port Laoise
It doesn’t seem that long since I “graduated” from dialysis in Tallaght University Hospital to dialysis in the Midlands Regional Hospital in Tullamore. That event happened in June 2019. Since then, of course, we have had the year of Coronavirus which has skewed how time feels to have passed. There have been highs and lows whilst receiving care in Tullamore. I’ve had to fight HIV stigma (see this post). Some of that is still ongoing, some of the problems have been resolved. There’s still no social worker for the hospital in Tullamore (see what I did on that issue). That … Continue reading End of an era… new chapter begins tomorrow