It’s been ten years of finding ways to raise awareness of HIV and people living with HIV. Here’s to the next ten years. Continue reading Ten years on – thanks to the nurses, doctors, and friends
In February, I wrote to the Minister of Health, Social Services, and Public Safety, Edwin Poots MLA, about the issues raised in the Terrence Higgins Trust Report on HIV and Poverty. This morning I go the below as the response … Continue reading Response to my letter to Minister on HIV and Poverty.
It has been a goal for many months, indeed it has been a goal since I was diagnosed back in March 2009. Suffice to say the goal posts have moved now… but what happened in the Royal yesterday? Up at the HIV Clinic in the Royal Victoria Hospital, Belfast it was great to see new faces, a few old ones and ones that have been there most days that I have been up. New social worker With Corinne having retired in June, there was a new social worker who has been in post for some months, he was very pleased … Continue reading Do we get to get your autograph now…?
Having said on UTV last week about how good I have been about taking my meds, it was rather unfortunate that today I nearly forgot about them. Fortunately, of course, I had my rather wonderful husband Andrew on hand to ensure that I didn’t forget. He’s so good that my consultant at the Royal Victoria Hospital has commented in the past that she would like to prescribe an Andrew for all her patients. Well a big thank you to him and next week I should be able to report to my consultant that I’ve only missed one dose in months… … Continue reading And I nearly forgot my meds…
The school children who sat public exams back in May and June only had to wait until August to get their results. Me? I had to wait a little longer for the results from my blood tests at the Royal Victoria Hospital. So how did I do? Well I am pleased to say that the results are good. CD4 = 180 (12%) Viral Load = undetectable The Eviplera seems to be working well so we’re always hopeful that my CD4 count will go above 200 at some stage. It’s never been there yet since diagnosis and I think the lowest … Continue reading More results: more good news
Yesterday I got a letter in the post regarding an appointment in the Neurology Clinic at the Royal Victoria Hospital. Hopefully this appointment will be when we will find out the results of the MRI and EEG that I had a few weeks ago. The letter itself, however, causes me to have some concern. It is clear that the letter template has not been updated since the changes to Health and Social Care in Northern Ireland. The letter states, An appointment has been made for you to attend the Royal Group of Hospitals Trust: NEUROLOGY CLINIC AT LEVEL 6B, OUTPATIENTS … Continue reading An end to the wait for me – but when will appointments catch up on the new Trust name?
Wednesday afternoon saw me up at the Royal Victoria Hospital once more. This time I wasn’t in my usual haunts of Level 3 in the old building. It was Level 3 in the new building. For those of you who don’t know the RVH, it’s a sprawling building which has been extended and rebuilt on a number of occasions. The latest rebuild has many levels none of which line up with their counterparts in the previous build. This causes much fun. Anyway, Andrew and I made our way up to the MRI department and I had an MRI scan. Even … Continue reading It wasn’t so scary after all…
It seems such a long time since I was at the Royal Victoria Hospital with the nice student Ryan for my ECG. Today’s post brought two separate letters from two different departments of the RVH giving me appointments for an MRI scan to my head, and an EEG. What seems rather strange to me is that despite coming from the same hospital in the same Health & Social Care Trust they look and read completely different. Neither has my address correctly, but they made it here. But at least I have finally got my appointments. Andrew had been suggesting that … Continue reading The long wait is over… at least we didn’t have to go private
I got out of hospital on Monday evening, and needed a dressing changed yesterday – but this was not managed because the district nursing service didn’t turn up. I was privately swearing about them, but today I find that it is not their fault. Despite being told that the ward in the Royal Victoria Hospital had asked for District Nursing to come out and see me, no one turned up. This morning when a very pleasant district nurse arrived on the doorstep, she told me what had happened… Apparently Grove Medical Practice had requested a visit daily from today 22 … Continue reading failure to keep accurate notes is a risk to my health