Over thirty years of experience and it’s a schoolboy error that delays my day!

With a hospital appointment clashing with the funeral of a friend, today was not the day for further delays to happen during a routine appointment at the Royal Victoria Hospital. Sadly, a simple schoolboy error ended up winding me up. At least I don’t have to return for six months… Continue reading Over thirty years of experience and it’s a schoolboy error that delays my day!

Back to work I go… an interesting day ahead!

By anyone’s standards, the past week and the weekend now drawing to a close has been a very busy one. Together with Andrew and as part of Faith and Pride I have been responsible for nine events within Belfast Pride Festival. Tomorrow I am heading back to work for the first time since Christmas as my GP has said that I should have a phased return to work from 1 July. Hopefully it won’t be too taxing – though since it there is a motion before the NI Assembly regarding the Social Development Minister, Private Members’ Business Call for an … Continue reading Back to work I go… an interesting day ahead!

Perhaps the Electronic Care Record can help us stop brushing HIV under the carpet in Northern Ireland

Northern Ireland is not that large, yet we have had many, many different systems for record-keeping within the Health & Social Care system. Historically, each hospital had slightly differing forms, and of course each hospital had its own number for you as well as a record of your health while there. To me, in a country the size of Northern Ireland this is sheer madness. It could be that one consultant in one hospital did not know what another consultant in another hospital was prescribing, or even what he thought was wrong with you. All this seems set to change, … Continue reading Perhaps the Electronic Care Record can help us stop brushing HIV under the carpet in Northern Ireland

#PersonalIndependencePayment goes live today in GB – have to wait to October for Northern Ireland

NAT has produced a great factsheet about the introduction of PIP in the United Kingdom which from this year will start to replace Disability Living Allowance (DLA). Today the system goes live in Great Britain, but not yet in Northern Ireland (as usual we have to wait a bit). From June 2013: New claims for PIP will be accepted from across the UK (October 2013 in Northern Ireland) and no new claims will be accepted for DLA from anyone aged 16-64, unless they are making a renewal claim from a fixed term DLA award which is due to expire before … Continue reading #PersonalIndependencePayment goes live today in GB – have to wait to October for Northern Ireland

Volunteering with the Scout Association – if I can do it, so can you!

Readers may have begun to wonder if I was ever going to post something more to this blog. It has been a bit far down my priorities in recent weeks. I’ve had a lot to do other than blog on here. Some friends will know that I volunteer with The Scout Association. Since December, I have been working principally with the local Scouts in Bedford, England. Although I live in Belfast, my local role is in based in England. However, thanks to the flexible volunteering policy of The Scout Association, it is perfectly possible for me to carry out the … Continue reading Volunteering with the Scout Association – if I can do it, so can you!

Do we get to get your autograph now…?

It has been a goal for many months, indeed it has been a goal since I was diagnosed back in March 2009. Suffice to say the goal posts have moved now… but what happened in the Royal yesterday? Up at the HIV Clinic in the Royal Victoria Hospital, Belfast it was great to see new faces,  a few old ones and ones that have been there most days that I have been up. New social worker With Corinne having retired in June, there was a new social worker who has been in post for some months, he was very pleased … Continue reading Do we get to get your autograph now…?

Standing up to the bully boys – well done @Naomi_Long

Since the playground, many of us have suffered threats and most of us think that that has been put behind us when we get to adulthood. Sadly, for many of us living with HIV in Northern Ireland they still come. It seems that even in the ‘new Northern Ireland’ our political leaders can get them too – for standing up for what is right. In the early hours of this morning, Naomi Long MP got told by the Police Service of Northern Ireland that a threat had been made against her life, both at her home in the constituency of … Continue reading Standing up to the bully boys – well done @Naomi_Long

3 days to go to WAD2012 – so much happening as we #PainttheTownRED

We’ve three days to go until World AIDS Day but with everything that has been going on today  as we Paint the Town Red in Belfast you would be forgiven for thinking that we had made it there already. First of all this morning I was at The HIV Support Centre in Belfast for the launch of its new name Positive Life by Brian Kennedy. Meeting him and listening to him as he chatted to clients, volunteers and staff of Positive Life was wonderful. I know that although I have never heard him in concert myself, I hope to make … Continue reading 3 days to go to WAD2012 – so much happening as we #PainttheTownRED

Back and looking forward to WAD2012

It’s been a while… I’ve been bad and not blogged on here for a while. I’ve not been neglecting this blog specifically, but other blogs that I have have been quiet too. Something happened recently that made me go quiet on them. But I know that people use this to keep up with how I am doing… so back I come… Of course, it is also coming up to World Aids Day 2012 – we’re just over a month away. It’s on 1 December if you don’t know… So it is time to think about what can be done to … Continue reading Back and looking forward to WAD2012